crps/rsd

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Tuesday, August 24, 2010

Anyone have CRPS/RSD? I'm stage IV, & looking for others to share info (Page 1) - Movement Disorders - ASA Forum

Anyone have CRPS/RSD? I'm stage IV, & looking for others to share info (Page 1) - Movement Disorders - ASA Forum

Posted by Maree power at 10:02 PM

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" WELCOME "

WELCOME TO MY BLOG, I AM HOPING TO CREATE MORE OF AN AWARENESS IN THE PUBLIC EYE ABOUT CRPS / RSD . CHRONIC REGIONAL PAIN SYNDROME , IS NOT A COMMON ILLNESS , LIKE CANCER OR AIDS , AND IT MIGHT NOT BE LIFE THREATENING AS SUCH, BUT IT IS VERY DEBILITATING , AND CAUSE LOSS OF LIFE AS THE SUFFER USED TO KNOW IT, BECAUSE ONCE YOU HAVE IT , YOUR LIFE CHANGES . YOUR LIFE BECOMES ONE OF PAIN, AND DISBELEIFE, EITHER UN DIAGNOSED FOR MONTHS , OR YEARS , OR UNDER DIAGNOSED. YOU HAVE THREE MONTHS IN WHICH TO BE DIAGNOSED, I WOULD LIKE TO KNOW WHERE THE DR'S ARE WHO CAN DO THIS , AS I HAD MINE FOR OVER A YEAR BEFORE MY DR TOLD ME THIS IS WHAT HE THOUGHT I HAD. I HAVE BEEN TRYING SINCE THEN [ ALONG WITH MY DR] TO TRY AND BE DIAGNOSED, BUT BECAUSE I DON'T FIT THE TEXT BOOK TYPE, THIS IS PROVING TO BE VERY HARD. BELEIVE ME , I DON'T WANT THIS THING, AND WOULD LOVE TO BE TOLD I HAVE SOMETHING, ANYTHING BUT THIS, BUT MY SYMPTOMS FIT THIS TOO WELL. EVEN IF BY SOME SLIM CHANCE I DON'T HAVE THIS , I WILL STILL BE TRYING TO GET IT TO BE KNOWN , BECAUSE IT IS A VERY CRUEL THING, SOME PEOPLE CAN'T BEAR TO WEAR CLOTHES, CAN'T STAND A LOVED ONE'S CARESS, OR CUDDLE , HOW WOULD THAT FEEL FOR YOU ?PLEASE HELP US SPREAD THE WORD. LOVE TO ALL OF YOU WHO HELP US .

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